I have observed an interesting pattern in V's services. If the speech therapist comes at 10:00 a.m. for a session, not much work gets done, but if she comes at 4:00 p.m., she can get a solid hour of work from V. When the occupational therapist came for a visit the very first time, over a year ago, at 10:00 am, V had the biggest tantrum I had seen in years. Yet, when the same OT came for 2 visits recently at 5:00 p.m., she was received peacefully and with cooperation and interest.
Now, I have specialist services scheduled at 4 or 5 in the afternoon on Monday, Tuesday, and Wednesday because I can see that V is not receptive to doing work in the morning, but is interested and willing to participate later in the day. It makes me look back and wonder if this is not part of the problem that we had with resistance to school activities. I now see that she is at her best when the school day would have been over.
It is an observation that has some interesting implications for service delivery, and worth looking at as we continue to schedule activities.
As you plan a program of services, remain flexible in your scheduling. If it doesn't work at one time of the day, try another time and see if that makes a difference.
ABOUT
Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.
This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.
No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.
Comments are welcome. Please share your knowledge with others.
For More Information
- Safety Harness for Use in Vehicles
- Autism and Sleep Disorders
- Solving Sleep Challenges with Autistic Children
- State by State list of resources by Autism Speaks
- Special Olympics Montgomery County MD
- Special Needs Trust Information
- Home delivery of incontinence products
- Clothing to prevent disrobing behavior
- Pathfinders for Autism; service provider listings
- Montgomery County Collaboration Council
- Sensory Integration Disorder
- The Ivymount School
- Child Find
- Adapted Aquatics
- The Kennedy Krieger Institute
- Circle of Hope Therapeutic Riding
- Maryland New Directions Waiver