There is a reason they say, "Trust, but verify." When you have others paid to care for a disabled loved one, there is always the fear that someone will take advantage of the vulnerability of the individual they are caring for. It has happened to me more than once with V.
Yesterday was a sad day. I learned that my trust had been betrayed and I had to release a long-term employee and discipline two others who remain employed.
If you allow others to take your disabled family member out into the community and they use your vehicle, invest in a GPS tracking device as soon as possible and install it on the vehicle. A verbal or written report is not sufficient to know the truth about where your loved one has been if they are not able to tell you themselves. If you care where your loved one is spending their time and can't be there personally, then you need to KNOW, not think you know based on the word, written or verbal, of your employees.
It is worth the cost. New Directions won't cover this precautionary expense, so it will be out of pocket for you.
ABOUT
Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.
This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.
No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.
Comments are welcome. Please share your knowledge with others.
For More Information
- Safety Harness for Use in Vehicles
- Autism and Sleep Disorders
- Solving Sleep Challenges with Autistic Children
- State by State list of resources by Autism Speaks
- Special Olympics Montgomery County MD
- Special Needs Trust Information
- Home delivery of incontinence products
- Clothing to prevent disrobing behavior
- Pathfinders for Autism; service provider listings
- Montgomery County Collaboration Council
- Sensory Integration Disorder
- The Ivymount School
- Child Find
- Adapted Aquatics
- The Kennedy Krieger Institute
- Circle of Hope Therapeutic Riding
- Maryland New Directions Waiver
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