There is a new respite resource in Northern Virginia. It is called Jill's House and sounds very impressive from what I have heard and read. Unofficially, I have heard that they are working with other area churches to help set up other similar centers and outreach programs to families that include a disabled child.
Here is a Washington Post article about Jill's house:
copy and past this URL to read more:
http://www.washingtonpost.com/wp-dyn/content/article/2010/09/29/AR2010092903265.html
In addition, you can go to Jillshouse.org and visit the website where you can take a video-tour of the facility and listen to some of the families that are served. I was very impressed by the facility after watching the video-tour. It certainly is well-designed and welcoming and is open to families of any faith (or no religious affiliation at all).
I do not belong to the McLean Bible Church but know people who do. They have shared with me that the minister has a disabled daughter and she was the inspiration to begin an outreach program to help members attend services while the children received the care they needed. This respite center grew from that original outreach program. I hope the idea spreads!
ABOUT
Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.
This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.
No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.
Comments are welcome. Please share your knowledge with others.
For More Information
- Safety Harness for Use in Vehicles
- Autism and Sleep Disorders
- Solving Sleep Challenges with Autistic Children
- State by State list of resources by Autism Speaks
- Special Olympics Montgomery County MD
- Special Needs Trust Information
- Home delivery of incontinence products
- Clothing to prevent disrobing behavior
- Pathfinders for Autism; service provider listings
- Montgomery County Collaboration Council
- Sensory Integration Disorder
- The Ivymount School
- Child Find
- Adapted Aquatics
- The Kennedy Krieger Institute
- Circle of Hope Therapeutic Riding
- Maryland New Directions Waiver
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