ABOUT

Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.

This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.

No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.

Comments are welcome. Please share your knowledge with others.

Wednesday, May 6, 2009

Always Finding Solutions - Hair

For many years, V had long hair, that was quite pretty when brushed, but always fell forward into her eyes and mouth. I always had to pull it back into ponytails or braids, but it continually tangled into knots and fell out into a halo around her face. She hated getting the knots combed out. A short hair cut was a problem because she wouldn't sit still in the stylists chair and I couldn't even be sure that she would stay in the salon at all for long enough to complete a haircut. A short cut would require frequent trims and all the problems presented by that. One day I had enough and decided to take the scissors to her hair and cut it short myself. It was okay, but not a good cut. However, it was much easier to wash and dry and it stayed out of her eyes and mouth and didn't get tangled. So, I set out to get her a decent short cut and maintain it properly. I went to our local mall where there is a Cartoon Cuts that specializes in cutting children's hair and I asked the receptionist if any of the stylists would consider making home visits to do hair cuts. One stylist only lived 5 minutes from my home and was delighted to come to our home to cut V's hair in her playroom. Now, V has her own stylist come to her room about once every 5-6 weeks to give her a trim and her hair looks very nice. It doesn't cost more than it would to go to the salon and it is far less stressful for everyone. I have recommended the stylist to V's nurse, who also has a disabled daughter, and this has solved a problem for her as well.
If visiting a hair salon is problematic for your child, give this a try. No more messy ponytails or unprofessional looking haircuts for V!