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Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.

This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.

No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.

Comments are welcome. Please share your knowledge with others.

Tuesday, June 12, 2012

Financial Advice for Parents of Autistic Individuals

I have not read this book, and can not endorse it. I would be interested in comments from anyone who may have read it.


Adviser Creates Guide to Financial Side of Raising an Autistic Child

A financial adviser and father of an autistic son, Greg Zibricky has taken his firsthand knowledge and written a book—"F.A.M.I.L.Y. Autism Guide: Your Financial Blueprint to Autism"—to help similar parents navigate money, insurance and legal issues.
Greg Zibricky knows that feeling of being told your child is autistic. It was 15 years ago when he and his wife, Dawn, found out their then-3-year-old son Aaron was diagnosed with the disorder.
Zibricky knows how overwhelming it can be to keep track of the day-to-day tasks involved with treatment, like medications and therapy appointments and doctor visits. In those situations, parents are thinking about the present physical health of their child, not his or her financial future.
That's why Zibricky, a certified financial adviser for 27 years and president of Provider Group in Frankfort, has written a book, F.A.M.I.L.Y. Autism Guide: Your Financial Blueprint to Autism, to give parents of autistic children a head start when it comes to financial planning, from the perspective of a father who has been there.
"Families have enough coming at them whether their kids are 3, 13 or 23, that it's very oppressive for them to think, 'I have to see an attorney.' 'I have to see a financial adviser," said Zibricky, a New Lenox resident. "I wanted them to have a real-life guide to kind of give them a jump-start. ... If a family has access to this material, that cuts down the amount of insecurity and the amount of unknowns they have."
Although Zibricky had never written a book ("I wrote a screenplay once. It wasn't very good."), he said he thought it was the best way to distill the knowledge he had developed over the past 10 years he's been doing this type of financial planning for his family, as well as for his Provider Group clients in similar situations. He's taken that information—culled from the individual timelines and plans he's created for dozens of families—and streamlined it for a larger audience, he said.
But the book doesn't simply answer questions like how to handle health insurance or apply for government benefits, it also lays out coping strategies for parents. For instance, the "F" in F.A.M.I.L.Y. stands for "Flexibility," and that chapter deals more with adjusting attitudes and outlook than it does cold, hard financial facts. Zibricky illustrates his ideas in that chapter—and throughout the book—with personal anecdotes of his family's experiences. (The other letters in the title, by the way, stand for Access, Money, Insurance and Yap, which stresses the importance of communication.)
In fact, Zibricky considers his personal perspective to be the book's most valuable asset. Even with his specialized financial know-how and his wife's nursing background, the Zibrickys faced—and still face—many of the same challenges and questions families without their training encounter.
"What shapes the book is the first-hand experience," he said. "As a parent you're approached quite often by folks who say they're familiar with your plight. But unless you talk to another parent, the reality is that's not the case."
"Here's a family that had the benefits of a mother who was a nurse, a mother ... who was active in the disability community before Aaron was diagnosed," he added. "And you know, here's the father who's a certified financial planner. ... If you're going to have two parents who could help, we were the ones, and we recognized that. And we find that to be powerful, because it's coming from the point of view that we had advantages. And there are other families who didn't have a medical background, didn't have a financial background, and had to deal with the same stuff we did, and even (with our advantages), it's hard enough."
The next step for Zibricky is to start to promote the book, which is on sale at outlets like Amazon andBarnes & Noble. In fact, he's already using social media, such as Facebook and LinkedIn, to spread the word.
As the book hits shelves, Aaron is just turning 19 and has graduated high school. It's a bit of synchronicity that isn't lost on Zibricky.
"The last 10 years have been everything," he said. "They've been trying, frustrating, exciting. But in a sense, we're just getting started."

Exercise DVD for Autistic Individuals

I have not used or viewed the following product, and so can not endorse it. If anyone tries it and would like to submit feedback about it, it would be welcome here.


New DVD Showcases Fitness Activities That Improve Socialization Skills For Children With Autism

WILLOWBROOK, Ill., June 7, 2012 /PRNewswire/ -- More than half of the nation's children with autism are overweight, at risk for diabetes or cardiovascular disease, have bone and joint problems or suffer from depression, anxiety and gastrointestinal problems. That alarming statistic...
WILLOWBROOK, Ill.June 7, 2012 /PRNewswire/ -- More than half of the nation's children with autism are overweight, at risk for diabetes or cardiovascular disease, have bone and joint problems or suffer from depression, anxiety and gastrointestinal problems. That alarming statistic was the impetus for a new exercise video for children with autism, hosted by nationally recognized fitness expert Suzanne Gray.  
Gray, who is CEO of Right Fit Sports Fitness Wellness, Willowbrook, has spent more than 30 years developing fitness programs for children with special needs.  Over time, she has seen how exercise works in addressing obesity, improving motor skills and muscle tone, eliminating self-destructive and self-stimulating behaviors and enhancing socialization skills for children with autism.  The DVD, entitled, Raising the Bar: Fitness & Movement Exercises for Youth and Adults with Autism, was produced by Healthy Learning and is now available to order online at www.Amazon.comwww.Right-Fit.com and www.healthylearning.com
The specific developmental exercises and movement activities featured in the DVD are included in Suzanne's innovative "Raise the Bar©" program, which are included in the book 101 Games and Activities for Youth with Autism. Her program received the Club Industry "Best of the Best Award" in the category of "Best Children's Fitness Program."
"The DVD demonstrates specific exercises parents and teachers can do with their children every day," says Gray.  "A structured routine is essential to improving the muscular imbalances and compensations, deficient motor skills, poor posture and other fitness pitfalls common among youth with autism. When you combine a fitness program with music and play, it enhances the way a child with autism responds to sensory information and it will boost independence, happiness and self-esteem."
ABOUT SUZANNE M. GRAY
Gray's programs have been implemented by community centers, schools, and park districts across the country. They have been deployed at the nationally recognized Argonne National Laboratory and with several private and not-for-profit organizations, such as Charlie's Gift, Hinsdale, IL; and Turning Pointe Autism Foundation, Naperville, IL.  These organizations/schools support and bring awareness to special needs children who struggle with various issues, such as socialization, motor skills and obesity.
For more information on Suzanne M. Gray or Right-Fit, log on to www.Right-Fit.com, or www.suzannemgray.com.
SOURCE Suzanne M. Gray