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Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.

This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.

No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.

Comments are welcome. Please share your knowledge with others.

Monday, May 7, 2012

Dynavox Maestro - Seven months later

When the Dynavox representative came out for the training, the most valuable item she provided was a programming cheat sheet. It made it very easy and quick for our speech therapist and I to program the Maestro in the way that we wanted to for V.
At first, V did not want to use the device for lessons, but understood that the purpose of the device was to communicate. She started using it right away to choose what to eat for breakfast. Then she began to use it to indicate where she wanted to go in the community, and more specifically, what she wanted to do at that location. For example, if she chooses the library as her destination, she can indicate if she wants to look for a movie, a book or look at magazines. She tells us if she would rather go to Chick-fil-A or Chipotle Grill for lunch and then she indicates her preferred menu items with the device. At home she can choose her leisure activity with the Maestro or tell us that she wants to rest.
We have to do a lot of modeling to encourage her to use the device as opposed to the gestures or actions she has used in the past to indicate her preferences. However, the speech therapist said that she learned to navigate around the pages in the device to find what she wants to say much more quickly than she had anticipated. V had learned as much in two months with the Maestro as the SLP had expected her to learn in a year!
As V masters the choices that have been programmed for her, we continue to add to her choices and to allow the complexity of her communications to grow. She is now willing to use the device during speech sessions with her therapist.
I am very happy with V's progress on the Dynavox Maestro. It has given her the ability to express her wishes in ways that she was never able to do before. I look forward to the time that she is able to better express her feelings with the device, both physical and emotional.