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Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.

This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.

No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.

Comments are welcome. Please share your knowledge with others.

Friday, May 25, 2012

Leaving Town

It is time for my husband and I to get away, leaving V at home with her caregivers. Well in advance, I post overnight shift opportunities for her usual daytime staff. I keep a file on my computer of documents I will update and print out each time we go out of town. These include a form that gives my written permission for support staff to authorize emergency medical treatment in my absence, with hospital preferences. I leave printed instructions regarding meals and appointments for V and check her medications to make sure that there is enough to last until I return. Usually this involves a trip to the pharmacy to refill something before I go. There are grocery shopping trips to make sure that I leave enough fresh and frozen food for all of her meals and snacks to last until I return. I check the dash of the vehicle that will be used in our absence and make sure it doesn't need oil and the battery has a strong charge. The last time I went out of town for an overnight, the car battery died in a park, requiring the staff to get a jump start from Park Police. Yikes!
Well, there is so much to do and worry about before I leave home that I almost need the vacation by the time I go. I exchange phone calls and texts with the staff each day to see how things went and to answer any questions that come up. Her routines continue without me. This makes my absence easier on her. This is how she is part of the family but lives her own life, while I have my independence too. I won't always be with her, so it is good that she can be okay away from me for a week now and then. I will tell her I am going away today and I will say goodbye tomorrow before I go. She won't like it, but she will be okay until I return.