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Maryland offers "The New Directions Waiver" as a means of self-directing state and federal Medicaid dollars for individuals who qualify for supports due to their disability.

This offers the disabled individual the opportunity to use those dollars to best meet their own unique needs. However, it comes with the responsibility to create a plan, a budget, and find your own resources to make the plan a reality.

No centralized source of resources exists. The purpose of this blog is to direct others to resources in our communities and to provide one example of a self-directed plan. (*Caution: The self-directed plan described at the beginning of this blog is for an individual with a 5/5 needs rating, the highest possible rating in Maryland, and therefore the highest budget possible. Most will have a lower rating and a lower budget to work with.) It is also to share firsthand knowledge of experiences that may assist others who self-direct services.

Comments are welcome. Please share your knowledge with others.

Friday, May 20, 2011

Research on Environmental Links to ASD's

The latest research has pointed to a combination of genetic predisposition and an environmental trigger as the suspected cause of ASD's.

This article by The Examiner addresses some specific suspected environmental triggers. I would like to see this study go one step further. In practical terms, what is needed is a list of specific products containing these harmful chemicals that parents can avoid, and a list of safe alternatives that parents can purchase.

The article has been copied from Disability Scoop and The Examiner:

Toxic chemicals found in baby products; some may be linked to autism

May 19th, 2011 3:13 pm ET
Mike Frandsen
DC Examiner
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A new study shows that 80 percent of products tested made for infants and toddlers contained toxic chemical flame retardants that can have harmful effects on health. The products include items made with polyurethane foam such as car seats, mattresses, and changing pads. Of the 80 samples in the study that contained flame retardants, 79 were either brominated or chlorinated.

Brominated flame retardants, or those based in the chemical element bromine, have been implicated as potential risk factors in autism spectrum disorders, cancer, and other health problems. Studies on brominated flame retardants have shown adverse developmental effects on animals.

Brominated flame retardants have increased in household products over the last 30 years because they make them less flammable. However, the toxins from these chemicals can leach from the products into the environment and accumulate in the body. Fetuses and babies are especially susceptible to toxic chemicals.

Dr. Philip Landrigan of the Mount Sinai Medical Center has said environmental causes, including brominated flame retardants, are strongly associated with autism.

“Over the last decade, we’ve developed very good scientific information that links three or four classes of chemicals to brain injury in babies if the exposure occurs during pregnancy,” Landrigan told Examiner.com in 2010. “We’ve found that phthalates, brominated flame retardants, and certain pesticides are linked to loss of intelligence, attention deficit disorder, and Pervasive Developmental Disorder in children.” PDD is one of the autism spectrum disorders.

Landrigan is one of the leaders of the National Children’s Study, which is expected to identify causes of autism and many other childhood disorders and diseases.

Donna Ferullo, the Director of Program Research of the Autism Society, said in a press release, “We know that little people tend to bite, lick, mouth, wet and fully experience these products, and absorb more toxins than adults by both habits and percentage of small body weight,” she said. “For example, a wet mattress sends an entirely new combination of untested vapors into a small, vulnerable system. Frequent and multiple exposures to chemicals combined with an inadequate detoxification pathway do not ensure healthy development of the brain and immune system. We strive to limit toxic chemical exposures in both the inception and modulation of autism to protect best quality of life.”



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According to the study, published in the Environmental Science & Technology Journal, of 101 products tested,:

Four products contained penta-BDE, a substance banned in 172 countries and 12 U.S. states.
29 products contained TDCPP or chlorinated Tris, a possible human carcinogen that was removed from children's pajamas in the 1970s.
14 products contained TCEP, a carcinogenic flame retardant.
Andy Igrejas of Safer Chemicals, Healthy Families said in a press release, "These are the worst kind of chemicals, and they are a potent symbol of the complete breakdown in chemical management in this country. You bring them into your home hidden in consumer products that seem benign. But they get out of products and into your bloodstream where they begin to damage your health. The government doesn’t do anything about it and that needs to change."

Proposed chemical safety legislation would empower the Environmental Protection Agency to minimize risks from chemicals proven to be dangerous, require safety testing of all industrial chemicals, and require businesses to prove chemicals are safe before using them. Currently, only 200 of the more than 80,000 chemicals in existence have been tested for safety.

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Suggested by the author:
Toxic Chemicals Safety Act to be on 2011 Congressional legislative agenda
Health advocates rally at Capitol for chemical safety bill; some chemicals linked to autism, cancer
Landrigan calls for more research into pesticides, toxic chemicals, environmental causes of autism
Congress: CDC misled public about Washington, D.C. lead in water crisis, lead was toxic for some
Autism advocate Lyn Redwood discusses mercury vaccine controversy, chelation, treatment and recovery


Continue reading on Examiner.com: Toxic chemicals found in baby products; some may be linked to autism - National DC | Examiner.com http://www.examiner.com/dc-in-national/toxic-chemicals-found-baby-products-some-may-be-linked-to-autism#ixzz1Mtrp9KZk